Wednesday, April 27, 2011
Monday, April 18, 2011
To make you smile....man, I love our crazy life!
Hailey absolutely LOVES matching Brooklyn and the girls had fun playing on Hailey's bed!
They're actually playing TOGETHER! Nevermind that Brooklyn keeps opening the drawbridge on Brennan's head :)
No matter how crazy and overwhelming our lives get, this makes it worth it!! We're so blessed!
Posted by Jennie at 11:58 PM
Saturday, April 16, 2011
Wow what a week! Last Wednesday our grief support group had a potluck for spring break and we brought Brennan, Landon, Brooke & Daddy. Hailey was so excited to bring her family :) We realized about 15 minutes into the meeting Landon's oxygen was turned off so we turned it back on, a little higher than usual, to let him perk back up. He was still sleeping but his color was good so didn't think anything of it. After the group finished, we put everyone back in the car and when we put Landon in, he lost his color and stopped breathing. We got him back out and stimulate him and he started breathing again, fast, but steady. I rode in the back in case we needed to pat his chest again but he was doing better so we decided to head home (took the route by the hospital just in case, but he was looking good). We really were on the expressway for about 2 minutes when he did it again and went into a seizure. He lost his color, stopped breathing, his eyes shot open and he was staring, shaking and stiff. I turned up his o2 as far as it would go and was patting and shaking him but he wasn't responsive so we called 911. We got off at the next exit and met the ambulance at a gas station. They had to give him 15 liters of oxygen and breathing treatments and we ran with lights and sirens to Allegiance. They started an IV, gave him steroid and antibiotic and sent us with lights to UM. Within 45 minutes of us being there, his o2 dipped low to 52% so the doc's kept a closer eye on him. He stabilized and Nich ran out to the car for a minute and all of a sudden Landon wasn't moving any air. He wasn't breathing in - somehow his airway was swollen and they had to immediately intubate. They had a rough time and at one point his o2 saturation was down to 3% and heart rate in the 50s. They had to have him sedated so he wouldn't fight the vent (they know him all too well!) and admitted him to PICU. He was on the vent for 3 days, in ICU for 5 days and we came home on the 6th day.
So what in the world happened?!? A urinary tract infection (UTI). He spiked a fever on the ride home which sent him into a febrile seizure. This swelled his airway and threw his respiratory drive out of wack. Also, when they were trying to get a urine catheter, the balloon on the end that keeps it in place burst and 'traumatized' his urethra. Urology was able to get in a new catheter and he bled for 3 days. Crazy! He also got 2 teeth while he was in! The docs were also concerned about his airway being floppy but thankfully has checked out ok for now. We did come home with a suction that can help us get the buggers from the back of his throat. Since he has a weak cough, this will help get that junk out of his throat and he can breathe better.
This whole experience just took me back to the critical times just over a year ago. Even though he wasn't as sick, my mind went back there. I was able to stay at Ronald McDonald House (really our home away from home) and got back in the hospital swing of things. When the babies are sick, God is so near. He is still near, getting us through all these challenges, but it's really evident when I'm exhausted, out of my comfort zone and away from home. We are so thankful for the strength and comfort God can give! There's now way we'd get through all of this without Him!
Posted by Jennie at 10:13 PM
Tuesday, April 5, 2011
Posted by Jennie at 1:27 PM
Friday, April 1, 2011
Wow! Time is sure flying! I can't believe the babies are 18 months old! They're getting so much more fun and definitely their own personalities! Instead of photo's this month, here's video's! They're so active, I love to catch it on video!
Brennan Nicholas Birth weight 1lb 4oz, 18 months weight 17lbs 10oz
Brennan is doing great! He's had the rest of his surgeries and hopefully they'll be the last! Since his eye surgery he's been able to sit STILL (not wobbly), standing STILL and playing with toys! Hence the video! Make sure to have your sound on so you can hear Hailey's commentary! :) Before he was always licking them and kinda flicking them with his fingers, but he can focus on things now! It's so cool to see! Brennan's in the running now for walk first too! He's fearless! He doesn't quite have the one foot in the other concept but he's totally fine letting go of our hands - and falling on the floor sometimes! :) He generally just gets right back up again! Brennan's also our little garbage disposal! He's eating so good by spoon and about 8oz at a time from bottle. Brennan and Brooklyn are now drinking Pediasure instead of Neosure formula! We're mixing it half and half with milk, otherwise it's a pretty potent drink. It's definitely doing the trick and he's gaining weight! He's also keeping his glasses on much better which will help his eyes to heal right. We're working with him on crawling (not army crawling, but on his hands and knees) and going from sitting to crawling and back up again. He's going to PT & OT twice a week and Early On is coming in once a week. That heavy dose of therapy is really working! He's such a silly, happy boy and really doing great!
Landon James Birth weight 1lb 7oz 18 month weight 21lbs 3oz
Landon, Landon, Landon! Landon's still recovering from his pneumonia a bit, but he's getting more and more active! He's also getting kind of a diva personality too! He throws a mean fit, but the trouble is he really needs to breathe during his fits! He's learned to hold his breath and play games with his breathing. He's not retracting or having trouble, just sometimes holds his breath and laughs once you tickle him. Crazy kid! Really exciting news for Landon is from his neurosurgery follow up appointment - they did an MRI to check on his hydrocephalus and it's VERY well under control! Before there was probably 2 inches of empty space around this ventricles and now there's maybe 1/4 inch! His brain has filled in the rest of his skull which means his brain is growing and new connections/skills are happening! Landon has been hitting milestones like putting things in his mouth, playing with his toes, holding things with both hands and he even said mama! My heart just overflowed! The sky really is the limit with this kid! Just as Nich and I kinda get used to the idea of having a severely impaired child, he does something new! He's so much more fun to play with (not feed, but we're working on that!) and actually interacts with us! Landon's going to PT & Speech Therapy twice a week and sees Early On at home once a week. Full schedules, but so worth it!!