Can I tell you I can hardly keep from jumping for joy all day today!!! Our babies are doing GREAT! Nich took Brennan & Brookyln to their audiology follow up appointments and heard good news - they think most (if not ALL!) of the hearing loss is conductive. Conductive hearing loss is fixable! They have another appointment in 4 months to evaluate. They might have fluid in their ears or need some kind of reconstructive surgery if there's something wrong with their ear canals. Their ears are still to small to tell right now. This is huge, since they originally thought both of them had moderate/severe hearing loss that was permanent.
Our other great news - Landon is off the ventilator today! Here's our strong boy on CPAP! His PICC line with all the IV's was pulled this afternoon (after Nich took the pic). All of his meds are oral, well through the feeding tube (NG tube). He is just remarkable! I look at him and am just in AWE of God. 3 weeks ago, the docs were just trying to get through the next couple hours at a time. They prepared us that he might go home on a stable ventilator or need a tracheotomy. Now, they are only thinking of a possible trach if he doesn't do well on CPAP (needing lots of support or can't transfer to nasal cannula). Landon is so strong - he is amazing the doctors and even us! There are so many things he should not have overcome (on paper, they don't figure in God and the power of prayer!). We've been thinking of hiring U of M's marching band to play when he finally comes home! Hopefully more great news to come! We are so blessed!
Oh, by the way! Brennan's 7lb 7oz, Brooklyn's 7lb 12oz and Landon's over 9lbs!!
On the other side of grief
2 years ago
8 comments:
So happy for your family!
All I can say is YAY for the great news!!!!
Keep up the good work babies!!
Continuous prayers,
Mary
yay!
grow babies grow!!! This is AWESOME news!!!! :)
Wonderful news!!! I really think you should hire the marching band - I think they'd love to do that for you!!!! He deserves it!!
Maybe the hospital could play a little band music in the NICU for him to get him prepared!
wow...that is all great news! our God is amazing!
Amazing news! So happy for you and your sweet babies!
I just caught up on your blog and found myself crying at the most recent posts. I am so happy that 2/3 of your sweet babies are home with you. I remember the joy of homecoming so well - enjoy having them home! I hope Landon is able to join them soon - he looks wonderful!
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