Tuesday, January 26, 2010

Landon's big belly

Landon is really sick right now.  Over the past couple days he has had difficulty breathing and his stomach has been extremely bloated, but the docs haven't found the reason.  Beginning Sunday night all of a sudden his belly was really swollen, but didn't know why.  He had eaten well on Saturday and was on low cannula settings.  Sunday night we got a call from the docs saying he wasn't doing well - there was a lot of free air in his belly putting pressure on his diaphragm making it hard to breathe.  He was going to be put on CPAP.  Monday when I saw him he didn't look good and wasn't his cute ornery self.  He was on more pressure support from his CPAP.  This morning he was even more support when I checked in at 7am.  At 8am I got a call from the docs saying they needed to intubate him (breathing tube for ventilator).  He had a Lower GI test test done today at 9am and he needed to behave for it so they intubated him.  The films showed what they thought was free air, but they weren't going to do surgery at that point.  His umbilical hernia is really large and they reduced it, thinking that may have been the problem.  At noon he was doing better, but then I got a call at 2:30 saying he was really bad and they needed to take him down for emergency surgery.  Needless to say, I flew out of my office and down to U of M.  When I got to the parking lot, they called saying after several consults with radiologists they don't believe it's that immediate and they'd schedule an Upper GI test tomorrow (Wednesday).  They believe that he might have NEC again but are not sure the extent of it.  They also think that his hernia could be putting pressure on his bowels which may cause them to have a hard time restricting and relaxing (allowing bowel to pass).  He's really lethargic, on high ventilator settings and his oxygenation had been poor.  It's hard to see him like this.  Saturday he was doing great!  It's really unbelievable how quickly things can change. At any point over the next couple of days he could have surgery.  Please pray for strength and comfort for Landon, wisdom for the doctors and surgeons and peace and strength for Nich & I.  We'll keep everyone posted! 
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Weekly update coming soon...the internet at RMH hasn't been so great.  (I've reconnected 5 times just in writing this!)

17 comments:

Britt said...

Jennie - I'm praying Landon will have a smooth night and the doctors will soon figure out what is going on!

Luluquack said...

So sorry to hear that Landon is poorly, know that you are all in my thoughts and prayers xx

melanie said...

Kevin and I have been praying since Britt told us the news yesterday afternoon. love you guys.

Cali Quad Squad said...

Jenni we are praying for you guys. If you need anything or you need to talk,let me know. The not knowing what's going on is the worst. I pray for answers and solutions for you. Your strength,faith and determination will carry Landon through this.

Rebecca said...

so sorry to hear landon is sick...will be praying for him and all of you!!

Wendi@Every Day Miracles said...

I'm praying for you guys! I know how awful the NICU roller coaster is. Very tiring.

Lifting you all up to Jesus right now. Especially little Landon.

Momma J said...

Jen--we are definitely praying for you and your sweet little man. Praying that the doctors can quickly find the right diagnosis and treat it so you can start bringing those babies home healthy!!

love ya
jenny b

The Paulk's said...

Oh no, what a set back! We pray for them daily, Riley even reminds us if we forget :)! Praying for wisdom in the docs and strength in Landon!

Mary said...

Praying so very hard.

Beth said...

I have been following your family's blog for a couple of mos now from M&M. I am praying for Landon, his doctors and for strength for you and Nich. I hope they are able to diagnose and treat Landon quickly. God bless you family!

Liz said...

Praying...

The Denby's said...

Special Prayers to all...Your family is a wonder to behold - God Bless.

Jen said...

Praying for full Healing!!

jag said...

Oh, Jennie... I know this must be so difficult to see him take this turn. Many many prayers for Landon and for those in charge of his care.

Esther and Brian said...

Poor little sweetheart. So sorry to hear this. May God provide him and you with all the strength needed to pull this through...you guys are in my thoughts often...

Kimberly & Alex said...

just want you to know that i am keeping your family in my thoughts and prayers.

Moni Graf said...

Lots of love and prayers from the KS Graf quads. Stay strong and be comforted knowing that your children have some really amazing parents!

Moni