Got another chance to upload some more pictures!! These are from before Landon's last surgery.
Landon's big boy bed! He looks so tiny!
Yep, that's a smile! My handsome little man!
Just hanging out, he is so sweet!
There's kinda a resemblance, right?! If Landon wasn't 2lbs bigger!Man oh man! So just to add to our crazy life...Friday night Hailey broke two little bones just above her wrist. She was playing with friends at a kids play place in Chelsea, having tons of fun when she got out of her chair, tripped on her beloved green blankie and fell right on the cement floor. She cried just a little bit when it happened, they saw that her arm was wavy and that bones were out of place, called us and took her right to the U. Nich and I had just switched Brooklyn at home, he went to work and Brooke and I were just going to hang out, but instead we drove back to Ann Arbor! Thankfully we picked up a friend on the way to help with Brooklyn and trekked on in.
When we got there, she and Josh were hanging out in the ER. Hailey had told all her nurses that she was a big sister and about all her babies. She always says she has 2 brothers in the hospital, 1 sister home and 1 sister in heaven. She is so sweet!! Most people don't know how to respond. One said "Oh I'm sorry." It's ok, Hailey's getting through it, it's her way of keeping Katelyn with us and she's ok.
She had eaten a couple crackers before she fell, so they had to wait 4 hours before giving her sedation! They moved us into a bigger ER room where they were going to fix her wrist. She watched them put in her IV even though the patient support was doing a great job trying to keep her distracted. She didn't even flinch! I think the babies get their strength from her sister too! A little after 10 they started her sedation and I stayed with her until she was out. While the sedation was kicking in she got a little scared because of the side effects. It was so hard, I think harder being there with her than the babies during their complications. She wasn't in pain, but she still knew what was going on and was so strong. We read books, colored (very creatively - thanks to Brittney!) and watched movies while we waited. Annette and Josh helped take care of Brooklyn so I could focus on Hailey.
They rebroke her arm, held it upright and wrapped it with a plaster splint. The xrays looked like they were able to align her bones straight as an arrow! We'll go back next week for a real cast. Here's some pics! These are from my phone...laptop will be fixed on Tuesday! Thanks Kate! .jpg)
Fully awake! That's our Hailey! :) This video is from February, but just got a chance to post it! Here's our turkeys ganging up on me! :) We so miss being at home!!
Here's my miracle baby boy!! Not the best picture, but you can see his cannula! He's on high flow which is a little different than before. It's a cross between cannula and CPAP. It gives him higher peep (pressure flow). He's at 4 liters and regular low flow cannula only goes up to 2 liter. (Brooklyn came home on 1/8 liter and before surgery Landon was on 1/4 liter. Just to give you reference.) Also, the docs and nurses are quite impressed (and surpised!) that they didn't find a floppy trachia, called Tracheomalacia. Almost all 23weekers that were on a ventilator as much as Landon do have Trachemalacia and need a Trach. We're not! :) God is good!
Growing up I was NOT a girly girl. I think that's why I've been blessed with one! :) Here's some cute pictures of the girls!
Grandma mailed Hailey this skirt & headband for Easter - SOO adorable!
She wouldn't let me take pictures of her looking at the camera!
She would while she was holding Brooklyn! They are just so cute together!
Hailey absolutely loves being a big sister and teaching Brooklyn how to do things!
Brooklyn laughs now! We're trying so hard to get it on camera and on video, but here's our best attempt so far! I love this stage! :)
After church yesterday, we were zonked! We slept for 3 hours! Now that's a Sunday afternoon nap! Even Spice (our cat) slept with us - all the girls!
What a weekend! As most of you know, Hailey is a complete girly girl! She has been eye-ing her Easter dress in the closet for quite awhile (I buy their holiday clothes end of season the previous year for super cheap!) and has been so excited for Easter! Two weeks ago when she came down to visit, Easter decorations were out at Ronald McDonald and she asked why. I said because we're getting ready for Easter! "Easter?!?!" Since then she's been so excited!
We took the girls to an Easter egg hunt at a church in the area Saturday morning and Hailey had so much fun! Brooklyn did great too!
Hailey made the bean bag in the hole during bean bag toss! She's got quite the arm!
Nich and Brooklyn! What great sports!
Our little scavenger! She LOVED finding the eggs and really looked for them! They were actually sprinkled across the yard in plain sight, but she enjoyed "the hunt."
We were talking about what our plans were for the weekend and told her we would go to the Easter egg hunt and then next day go to church on Easter Sunday. I told her Easter Sunday is when we celebrate Jesus going to heaven. Being the thinker she is, she asked why we look for eggs on Easter too. I said because after Jesus died, people were looking for him but couldn't find him. Of course, "where'd he go?" I said, he went to heaven. "Oh! To make it for Katelyn!?" I just smiled and said yep, and for all of us too! That afternoon Hailey and I colored Easter pictures for the boys and she colored one for Katelyn since she couldn't come look for eggs. She wanted to go get a balloon that could carry her picture and a small Easter toy to heaven. She can't wait to get to heaven and see Jesus, Katelyn and Papa Art (Papa Heart to Hailey). What an amazing little girl she is!
After the festivities, we headed home for the night. It was so nice to be home!! Hailey & I dyed eggs and then got a little carried away and also did onesies and our underwear! She dyed everything and did a great job! She went to get her mixer because it was WAY more effective at mixing the dye before dipping! :) I'll post another picture of the finished products!
We can't forget the boys! :) Here's spiderman bunny Brennan wearing his ears!
Landon wasn't too keen on the idea either...Oh well, he's adorable!
Brennan, Brooklyn & Ann (one of Brennan's primary nurses) all sporting the ears!
More posts to come...with pictures! I got access to a laptop with internet and got all these pics uploaded! Our laptop's on the mend and should be back shortly!
Surprise, it's about Landon again! So I can just give a quick update and will know more on Monday...Landon's still on the ventilator from surgery last Friday. The docs tried to extubate (take him off the vent) yesterday without success. He did his notorious clamping down on cannula which was really scary as they had no means of making him breathe. He's been showing good signs on the vent and doing a lot of breathing on his own or above the vent. He's on about medium vent settings still. Today Nich talked with the docs and they want to do a couple tests on Landon Monday. He still hasn't pooped since surgery Friday even after suppositories. They're concerned about his bowels and a possible obstruction. When they fixed his hernia, his intestines had grown around the hernia and it was complicated. They're not using the Gtube until he poops so they know everythings working right. He's probably going to have a GI study again on Monday. Also, because of his clamping, they also think there's a problem with his airway. After they get the bowels under control, when they extubate him next (hopefully soon!) they'll take him down to OR to do it so they can get a good look at his airway. They talked about the need for a trach or home ventilator again.
Please pray for Landon (and for us!)! We thought he beat this after he recovered from the Human Metapneumoviraus and went to cannula. He very well may be testing us and the doctors, he is a miracle and we need to keep our eyes on that! God has gotten him through SO much, and we cling to that! Landon just needs a break to rest and recover. I'll update on Monday (or close to!). We know when we post a prayer request, the prayer warriors start! So we're praying for a complete turn around and clear test results in a few days!
