Thanks for being patient while I post this update! Now that it's almost time for 8 weeks! :) It's been so busy now that we can do more with the kids! Now there's bath time, diapers and holding! Wouldn't miss one of these opportunities!
Brennan Nicholas 1lb 15.5oz (birth weight 1lb 4oz)
Brennan has had a great week! He is being trialed onto nasal cannula and doing really well. The first day he went for 10 hours, but got really tired at the end. Now he's on a schedule of 3 hours on nasal cannula, 6 hours on CPAP throughout the entire day, of course only if he's up to it. I love seeing his face! We've got some cute babies! :) When we hold him now they let us do it when he's on the nasal cannula. He's so much more awake and active. He studies us and follows us with his eyes. Brennan's also getting so much breast milk! His amount changes each day, but I think it's about 13cc every 3 hours. They're getting 22 calories every feeding - crazy that I was eating 4500! When they were first born they were getting 8 calories for the entire day. They have come so far! We are so proud of our miracles!
Landon James 2lbs 5oz (birth weight 1lb 7oz)
Landon has had an eventful week. Earlier this week he developed pnemonia, which wasn't the best for his lungs! Also, today (Thursday) he had a McComb reservoir inserted in his head. This will allow doctors to drain fluid off his brain (due to Hydrocephalus) as often as necessary. This will decrease the pressure put on his brain. The surgery was this morning and he came through perfectly! Praise God! It was hard to see my baby go to the OR. I was able to walk with him out of the room and down the elevator to the OR, but they turned the corner and we headed back upstairs to wait. Pastor Ken and my parents came down to be with me, as Nich had to work that day. I'm so thankful for them - keeping spirits up and praying for Landon. This picture above his post-surgery. He just has a small bump on the top of his head that they can insert a needle into a tube that goes down his ventricles. His ventricles are swollen and the plan is to remove 5cc's per day and see where we're at. If his ventricles don't go down and drain fluid like it's supposed to he may need a shunt when he's about 4lbs. He's gaining weight so fast, that shouldn't be too long! Good news - Nich and I got to hold him before surgery on Tuesday night (surgery was originally scheduled for Wed morning). He did great! He was so awake and also studying us. He got the hiccups while I was holding him! So precious, now we've held all of our children! What an amazing feeling that is!
Brooklyn Danielle 1lb 15oz (birth weight 1lb 3.5oz)
Scooter Brooklyn! This week Brooklyn was moved to CPAP and she loves her freedom! Here she is in her pre-scoot position! This girl can move! We tuck her snugly around her and think she's in there good, but then we look at her again and she's out of it and moved on her bed! She's gotten up against the glass before! She can also turn her head from side to side, even with the heavy CPAP on! Brooklyn is the leader with her feeds, getting 18cc's and 24 calories. They removed her PICC line, as she's only getting breast milk, and not needing TPN (her special iv nutrients). That's a huge milestone! She'll be putting on weight quickly, if she doesn't use too much energy breathing with CPAP! I've said this before, but it's so neat to see their personalities showing, they are distinctly different babies! We love them so much!
Amongst the wonderful progress and happy moments with these three, this week was also really hard for us. Katelyn was cremated on Friday and Nich and I picked her up from the funeral home on Sunday afternoon. The funeral director was so flexible and sensitive with us, coming on his day off because it was an afternoon Hailey wouldn't be with us. On Friday when I got the call that the cremation was done, a flood of emotions came. I knew she had died, but it hadn't been final for me until then. In the back of my mind, I was waiting for her to come back, as weird as it may sound. Jesus raises the dead and my kids are such miracles, I thought it wasn't impossible. On Friday, it was final. My daughter's spirit immediately went to be with Jesus on September 27, but I wasn't ready to give up her body until now. God's peace certainly passes all understanding. Though I felt the pain of losing her all over again, I also felt joy for the brief time we had with her. We are so thankful for the time with her both in the womb and outside. She was always the most active one, sliding up and down her sack at about 18 weeks and bouncing the Kleenex box with Brooklyn at 22 weeks! We didn't have much time with her once she was born, but have happy memories watching her grow which we are so blessed to have. My mom found a really neat service called Memory Glass that we are getting to put her ashes in. I'll post pictures of that once it arrives. Continue to keep us in your prayers as we plan a memorial service for Katelyn and continue on enjoying Brennan, Landon, Brooklyn and Hailey.
Also, we were able to go back to church on Sunday!!!! It was so good to be back, words can't express how awesome it is to be around such prayers warriors! We shared pictures and updates of the babies and were overwhelmed by so many people praying for and loving us! We have a renewed amazement of God's strength, peace, power and healing. How awesome to praise with fellow believers! Daily we are blessed by our little miracles and the plan He has for them. Thank you all for continuing to lift up our family! Glory to God!
On the other side of grief
2 years ago
9 comments:
Brennan looks like he he knows something we don't know in the pic with his hand on his mouth! I LOVE IT! Get some rest!
beautiful! praying for energy and strength!
Angie B said it all, "Beautiful, energy, strength, rest and PRAYER" for your entire family. You all are and will continue to care for each other and continue to feel God's arms around each and everyone of you.
God Bless as you rest this night and always.
they are soooo precious!! it looks like brennan is hiding a smile behind his hand in the 2nd picture.
"I'm sure pictures are what you all are looking for anyway!" I'm ashamed I didn't address this with my last comment...it tells how hopeful and prayerful your family is, yet it shows the toll that can catch up with you: Yes, we all love the pictures but DON'T feel any guilt for taking time out to rejuvenate yourselves. It's SO important and we ALL understand. You take your time with any and all updates - we continue to pray. Your entire family MUST take care of yourselves in order to be there for each other and all your children. Haven't met (yet) but we all know: God loves you…and so to we!
Can't believe it's taken me 2 days to see my typing errors...I WILL get this down to a science by time the babies are all home. Love ya!
With my trivial worry about
"spelling" I didn't realize until
this AM that you had made an update.
My tears flow as my heart beats
between joy and sorrow for you all.
God Bless!
really enjoyed reading the updates and knowing how to pray for each baby. the updates are right up there with the pictures, jen!
praying for you guys as you plan a special memorial for katelyn.
It is so great to hear that they are doing well! Thanks for updating! You guys are still in my thoughts and prayers.
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