Saturday, October 10, 2009

If it's not one, it's the other...

The babies change everyday, if not every hour! Here's an overall update. All babies have their PICC line which can be used longer than the lines through their umbilical cords for medication, manage blood pressure and other goodies. This is a huge accomplishment! It goes in a vein from either their leg or their arm to their heart. Brooklyn and Brennan are through their leg and Landon is through his arm (pretty sure! I might have to go down and look at them to make sure!) Each of the babies have also opened their eyes! Brooklyn was first (10/7), Brennan second (10/8) and Landon last (10/9). We took pics last night of everyone, but haven't got them uploaded to the blog. Check back! :)

Landon is now our superstar! He's hanging in, really steady. He's keeping us sane right now! :) He's so fiesty he had to be in a 5-point harness! His arms and legs are always flailing and touching tubes and leads that he shouldn't be. Today I got to change his diaper! His nurse let me do it all by myself! When I first opened it up he was still peeing...I'll definitely have to get used to having boys! :) Another bonus - I got to hold his hand (well he held my finger) to calm him down and just show him some love. He had a white-knuckled grip on my finger!! Not sure if it's his because he didn't want me to go or because I bothered him! :)

Brennan is now the one they're most worried about. The last 2 days he has gotten progressively sicker. Yesterday his blood pressure was so low. He was maxed on his Dopamine and Dubutamine (blood pressure meds) then they added Epineferin to try to get it up. It was still hanging low and the docs weren't sure what was causing it. He hasn't had any new infections and his PDA is moderately open (rather than really open like his siblings). We woke up this morning to a message from the doctor saying he was critical and we needed to come as soon as possible. They thought he was in renal faliure because he hadn't peed much at all. They thought he wouldn't make it and we were trying to prepare ourselves for losing him. We called our church and family to start the prayer warriors early - God is in control. The docs said they were reaching the maximum medically that they could do, but we have God in our pocket! :) He had the best nurse, we were worried when we got to the hospital, but after seeing who was taking care of him, we were so at ease! We all were praying and watched another miracle take place! God is sooooo good! His blood pressure started rising and he started peeing! Never been so excited for pee and higher blood pressure!! The heart surgeons and gut surgeons are following him and said they probably need to act this weekend. They're just not sure what is wrong. He had an abdomenal ultrasound to see if he had dead bowel that needed to be removed or fluid build up, but that's not the case. This morning the heart surgeon said he wanted to make sure all other reasons were explored before jumping to the PDA surgery because he was so sick. He has taken a major turn for the better! He still may need some type of medical intervention, but the nurses are able to wean him off some of the blood pressure medicine and he has been peeing consistently. Horray!!

Brooklyn is such a trooper! She had her PDA surgery yesterday and pulled through great. She is pretty swollen from the surgery and they are really wanting her to pee to get rid of some of the fluid. In the last 24 hours she had a larger breathing tube put in (with the smaller breathing tube, there was extra oxygen just coming right back out her mouth), PDA surgery and a PICC line inserted. She has had major surgery and is in recovery. They said she'd perk up in a couple days. She's hanging in there!

We are so thankful for all of your encouragement and prayers! God is our strength - there's no way we could handle this on our own! Each day with these little guys is such a blessing and we have witnessed so many miracles. Our faith is so strong! Our babies have such great care, but medicine only goes so far, as Brennan showed us today. God is in control and steady. Our babies are weak, but God is their strength. We hold on to this. Thank you all for EVERYTHING you have done and all the support you have given, from the bottom of our hearts. We are so grateful!

10 comments:

jag said...

Goodness! So much going on! I was on pins and needles reading! SO SO thankful Brennan is doing a little better! Phew! Praying for you ALWAYS!

Rebecca said...

wow...you guys have been busy. we're always thinking of and praying for you all...and so are our friends and family. so happy to hear brennan is doing a little better.

Tiffany said...

Still sending our prayers. I remember, like it was yesterday, praying for pee. I even searched online for a dance...you know like a rain dance. I think I saw something on youtube but I am pretty sure if I had busted out the moves in the NICU they would have admitted me! Stay strong!!

Esther and Brian said...

So glad to hear that Brennan is doing better...got me worried when reading...keep up the prayers, God is GOOD! Big hug to you from Illinois!

The Denby's said...

You have a "white knuckled hold" on everyone's hearts. You are doing just as God has taught and with that we can see how amazing He is...and how amazing he's helped you to be.
Prayers constantly and God Bless.

The Paulk's said...

We think of you guys often and continue to pray for each one of them!!

Angie B said...

Lots goin on!! God is def workin!

Britt said...

I love your sentance and the truth: you have God in your Pocket!!

LMM831 said...

Wow! So much gonig on! We are keeping the prayers coming. Anthony and Brendan asked to see the pictures. They are so worried for your little ones!

Amanda said...

I have gone through and continue to go through what you are going through with your little ones. I had sextuplets, with two girls remaining. It's tough, but hang strong as it only gets better.